Rare Bone Disease Alliance (RBDA)

About us:
The Rare Bone Disease Alliance is a new organization which works to educate physicians, expand research on rare bone disease and assist rare bone disease patients, patient organizations, and family members
​The Alliance encourages professional, medical, and scientific societies to expand their educational programs on rare bone disease and will organize its own meetings and workshops.
​The Alliance is built on the progress and success of The Rare Bone Disease Patient Network (RBDPN), a coalition of patient organizations which was founded in 2006.
​Alliance participants include rare bone disease physician and scientific leaders, patient organizations, and pharmaceutical companies working in the rare bone field.